To the Zoo We Go

Carter went to the zoo for the first time today.  And, he loved it.  He is going to be an animal lover for sure.  We went with Aunt Steffany and her family.  The weather was finally nice, so that was great.  Carter's favorite animal was of course the Giraffe or as he says it "Rafff".   Thanks Aunt Steffany and Kathy for carrying Carter around so he could see all the animals up close (I know you did it for the loves though...).

First Wagon Ride!!

Even found Uncle Jason hanging out at the Zoo!




Carter's friend Carter went to fly with the Angels yesterday.  Rest Peacefully sweet angel!!!!

Carter's Friend

This little man could use some prayers.  I call him Carter's friend even though we only know him over the internet.  He lives very close to us, and we see some of the same Doctors.  He is a doll.  If you could just take a moment to say a little prayer or send some good vibes his way, we know he would appreciate them.  

Did I catch you eating??

Carter seems to be doing a bit better with his eating.  There are times during the day when he actually acts hungry which is really not like him. Today he finally enjoyed a strawberry.  I can not tell you how many times I have given him a strawberry, which he would immediately reject or just feed to Kenai.
Sorry for the lack of posts lately.  It has been raining here quite a bit, so I have not been taking as many pictures outside.  And, Carter is just chugging along right now.  We have his scope scheduled for the 3rd of June, so we should have some news after that.

Why?

Why did Pierre Robin ever have to be known to my family?  Really, I hate it!  You know how people talk about what a blessing some diseases or accidents have been to them?  Well, I really have found no blessings in PRS.  Trust me, I have tried to see the good.  My son struggled through hell, pain, and torture this past October and November in hopes that he would come out of it all breathing like a champ.  And the results... Worse than before the Mandibular Distraction.  Dr. Muntz called and said this last sleep study we just did was worse than the one in September.  Is that even possible?????  Carter had an average of 109 "episodes" (where he stops breathing) in one hour.  That's 2 per minute people!!  Dr. Muntz said even if it was half that, say 50 episodes, it would still be a bad sleep study.
Game plan: to do a scope in the office to see if we can see any other obstructions and to make sure his palate is working the way it should be.  No, this appointment is not set up yet (adding that for Mema and Aunt Nanna).  Hopefully super soon, seeing that Tim is going to be leaving in a week...  And, we will go from there.  Some possibilities after that would be an at home pulse ox study or a CPAP.
Needless to say our house tonight has been full of many tears, many hugs for our little man, and no "No's" for him.  I am so angry he had to go through the Mandibular Distraction for nothing, nothing at all.  My sweet boy will forever have the scars on his face to remind him and us of that terrible time that now continues to only get worse.  Please pray for my sweet angel.  

Even this outside our front door could not make us feel better.

Mother's Day

I love being a Mom.  I love it with every bit of my heart.

We went hiking for Mother's Day this year.  It was great to get out with my little family and enjoy each other.  Being a Mother is wonderful.  It is the hardest job, but the pay is out of this world.  I love doing what I am doing right now, and feel so blessed.  

Happy Mother's Day to my Mommy.  Thank you for all your hard work you put into me, and the love you continue to show me each and every day.  I could only dream of being as good of a Mother as you are.  

Thanks to everyone for making this a wonderful day for me.  Including Timmy, Carter, and Kenai.  And thanks to Richard and Carlene for the awesome card and gift!  And, thanks again to sweet Carter for choosing me to be your Mommy.  You rock my world little man!!    

For my favorite picture from our hike, don't forget to check out the Picture of the Day!

FUN

Carter has continued to keep me on my toes this past month.  Many of you know that we started him on Prevacid about a month ago to help with his acid reflux.  Everything was going along great, until the diarrhea started.  Carter was actually eating more, and actually eating some real foods.  But, the diarrhea started and would not stop.  So, my little man has been suffering for close to a month now.  He is very irritable and just not feeling well.  We went to see his pediatrician earlier this week.  I expressed my concerns to her that I thought he had C-diff.  (I would like to use this moment to inform everyone that Tim thought I was crazy about the C-diff stuff, and thought I was over reacting).  So, she sent us home to get a stool sample and also gave us some referrals to the GI clinic at Primary's.
Well, we got super lucky because the FUN Clinic had a cancellation and they were able to get us in today (we had set up an appointment for July 22nd!!)  The FUN clinic involves a gastroenterologist, a social worker, a nutritionist, and also a nurse.  And we see them all in one appointment.  It was 2 hours long, but really good for us.  They felt we were getting all the right care for Carter, and were happy to see we were using all our resources.  Long story short, we have a new game plan for Carter.  First, he has C-Diff!!!  Yes, I was right (In the doctor's words: "Why have a lab when you can just have a nurse sniff this stuff out?")  So we got him on a horrible antibiotic to hopefully clear that up.  Second, we are going to start him on a lower dose of Pepcid and hope it does not completely clear out his GI system like the Prevacid did.  Third, we are going to have 5 meals a day for the little man.  Yes people, 5!!!  And, if things do not start looking up on the eating side of it all, we are going to start him on some meds to help empty his stomach faster so he might actually get hungry.  Are you exhausted yet?  So, we have another doctor to add to Carter's list.  We really enjoyed this doctor and we will be seeing him in another 6 weeks.  No news yet on his sleep study, I will let you all know when we get those results.    

           Carter with his stool sample! :)

Sick Boy

Tuesday night Carter came down with a fever and has been feeling horrible since.  He has fought a fever all week, stuffy nose, and extreme fatigue.  All he wanted to do was sit in my lap and cuddle.  The worst part is all he wants to do is sleep, but he is unable to breathe.  It is horrible watching him struggle for a breath like this.  Stuffy noses are sooo bad on him.  It is just confirmation to Tim and me that the mandibular distraction failed for him because the pin pulled through his bone.  And confirmation that we need to get him help once again so he can actually get some good rest.  Because Carter has been so tired, you will find him resting in the oddest of places.  Like, at the top of the stairs:  

Yes, he is asleep.