Why?

Why did Pierre Robin ever have to be known to my family?  Really, I hate it!  You know how people talk about what a blessing some diseases or accidents have been to them?  Well, I really have found no blessings in PRS.  Trust me, I have tried to see the good.  My son struggled through hell, pain, and torture this past October and November in hopes that he would come out of it all breathing like a champ.  And the results... Worse than before the Mandibular Distraction.  Dr. Muntz called and said this last sleep study we just did was worse than the one in September.  Is that even possible?????  Carter had an average of 109 "episodes" (where he stops breathing) in one hour.  That's 2 per minute people!!  Dr. Muntz said even if it was half that, say 50 episodes, it would still be a bad sleep study.
Game plan: to do a scope in the office to see if we can see any other obstructions and to make sure his palate is working the way it should be.  No, this appointment is not set up yet (adding that for Mema and Aunt Nanna).  Hopefully super soon, seeing that Tim is going to be leaving in a week...  And, we will go from there.  Some possibilities after that would be an at home pulse ox study or a CPAP.
Needless to say our house tonight has been full of many tears, many hugs for our little man, and no "No's" for him.  I am so angry he had to go through the Mandibular Distraction for nothing, nothing at all.  My sweet boy will forever have the scars on his face to remind him and us of that terrible time that now continues to only get worse.  Please pray for my sweet angel.  

Even this outside our front door could not make us feel better.