Thursday, October 27, 2011
Friday, October 21, 2011
Fall Camping
Two weekends ago summer came back for a few days. We decided to take advantage of it by going camping on Lake Michigan. We camped around Traverse City and it was so much fun! The beaches were wonderful, and the water was a beautiful color.
On our second day, we headed out to The Sleeping Bear Dunes National Lake Shore. When we moved to Michigan, everybody would tell us this was a must place to go. It was even voted Prettiest Place in America by Good Morning America. Yeah, it was pretty, but prettiest?? I guess growing up in Alaska, I am super biased. But, really, this place has nothing on Alaska. There was a lot of sand, and a big lake. The water was a great color, but where were the mountains? They have a big sand dune that everybody climbs. It was a big climb for little Carter, but he ran up the whole way. I assumed at the top there was going to be an amazing view of Lake Michigan. Wrong, just more sand. But, Carter did love it, and it proved to us that there is no wearing out this little man if that hill could not take him down. Either way, it was so nice to get out of Eastern Michigan. And the fall colors were out in all their glory.
Posted by Amber at 8:11 AM 3 comments
Tuesday, October 18, 2011
Goodbye
Saying Goodbye to the CPAP!!! We hope to never see you again!
I am so proud of how you handled wearing this thing for over a year Carter. It is amazing how easy going you were about it, and how you would keep it on at night. You rock my little man!!!!
Posted by Amber at 6:43 PM 2 comments
Labels: Pierre Robin Sequence
Tuesday, October 4, 2011
Results are In
All the test results are in for little Carter. I have been having people calling wanting to know all the findings, so here it is for you all. Do you like the bad news or the good news first? I prefer the bad stuff first, so here we go:
CT (head)
- Right side of jaw smaller than left (No new news here, we knew that)
- Small chin (didn't need a fancy test for that)
- Open airway
- Adenoids are HUGE (have to have them removed)
CT (Chest with Contrast): add on test after findings from scope
- Accessory bronchi going to right lung
- Have to make appointment with General Surgeon to discuss what this will mean for Carter
- My interpretation: Carter is just more special than we ever thought
MRI
- Chiari 1 Malformation
- Flow of spinal fluid is being interrupted
- Have to make appointment with Neurosurgery to discuss what this will mean
- If you don't know what this is, Google will do wonders for you
Echo
- Perfect :)
- See, I told you there was good news!
Sleep Study
- Apnea: 0.8 (That would be like nothing!)
- Lowest oxygen dropped was 83% for just a second
- Snoring noted (which could clear up once adenoids are removed)
- No longer needs to wear CPAP
- Best news was have had in a long time!
So there you have it. When we scheduled Carter for all these studies, I was thinking we were just going to get information on how to improve his breathing at night. I had this thought in the back of my head that we could find out something else unwanted, but that was all it was, just a thought. So now that we have the information, we get to try and figure it all out.
I love you dear Carter. We will figure all this out, and hopefully it will just be a memory soon enough. You are tougher than any person I know, and I know you will handle this like the champ you are.
Posted by Amber at 7:32 PM 3 comments
Labels: Pierre Robin Sequence
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